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Thoracic Outlet Syndrome: the culprit du jour?
THORACIC OUTLET SYNDROME (download printable article) Fig 2 fig 2, Thoracic Outlet Syndrome You may already know, if you’ve been reading lately, that I recently found out I have atrophy in my dominant...
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Digging for joy
Originally posted on my facebook @ 7:36 pm. Decided to repost here with slight additions. Today, I knocked over a rack of plants in the oasis (my pool enclosure). Ugh. Plants seem okay. One had to be...
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Why ‘Hope’ is a four letter word…
Today is my EMG Nerve Study (quadrilateral) to find out what the deal is with my hand atrophy (left hand below) and other neuropathy related issues. I'm fine with the test; done it before. Nervous...
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Do I smell like two old goats?
Actually, the lotion smells very good…just herbs. It does not trigger my Hemiplegic Migraines, and it is good stuff…all these are great! This is my night table full of neuropathy creams, etc. All are...
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Cause of postural tachycardia syndrome found
Partial autonomic dysfunction that is more pronounced in the legs than in the arms can cause the postural tachycardia syndrome via Cause of postural tachycardia syndrome found | theheart.org These...
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Thoracic Outlet Syndrome from another perspective….
Wladislaw Ellis M.D. – T.O.S. Specialist, writes… My initial experience with this disorder also caused me a great deal of puzzlement until I began helping a surgeon during his thoracic-outlet...
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Thoracic Outlet Woes & Diagnosing De Quervain’s
THORACIC OUTLET SYNDROME SYMPTOMS Above, I highlighted the Thoracic Outlet symptoms and issues I definitely have. I haven’t been tested for lesions, so I left out that part. I probably do have some...
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Stamping Joy: Eclectique Update
I’ve been able to do a little bit of stamping work again, though it is slow going with a bulky brace on my dominant hand/wrist/thumb. I can’t work at it for long periods, or I will exacerbate the De...
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From Chronic Fatigue Syndrome to Fibromyalgia To POTS To Success: One Woman’s...
Sjögren’s syndrome (Photo credit: Wikipedia) From Chronic Fatigue Syndrome to Fibromyalgia To POTS To Success: One Woman’s Journey Through the Medical Profession – Health Rising. Lauren and I...
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DeQuervain’s Dilemma
I have an appointment with a hand surgeon. It is pretty clear that this beast isn’t letting up without intervention; it’s already progressed more than halfway up my forearm, which means it is advanced....
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Eclectique Update: Carts and Zebras
I believe I have been putting the cart before the zebra. I have been going at this backwards, and I am going to try a different approach. Instead of asking folks (who have outstanding orders) to stick...
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Jaded no more…
Awesome news!!!!! I got a fat folder from the Veteran’s Administration in the mail Thursday… drumroll, please…. I am now at 100% (service connected) on my VA Disability!!! Technically 170% – I was at...
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Rollin’ POTSie Style!
Well, after laying on the floor at the doctor’s office Thursday afternoon, curled on my side with my coccyx pillow between my knees yet again, I finally bit the bullet and ordered a wheelchair. It’s...
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Zebra Mobile
Remember my post Rollin’ POTSie Style a few days ago? Well… My sporty Zebra Mobile (as in medical zebra- I have Ehlers Danlos, Dysautonomia, and several associated comorbid conditions) arrived!!! I’m...
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Notes on Veteran’s Disability Upgrade – Lumbar Exam
Reading my VA exam files today, I made some brief notes on the findings for this portion. They have me dx’d as ‘incomplete paralysis‘ (other options being ‘normal’ or ‘complete paralysis’) of lower...
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Trigger Points Tutorial
Trigger Points TutorialFiled under: Arthritis, Autoimmune, Disorders of the Spine, Dysautonomia, Ehlers Danlos Syndrome, invisible illness, Migraine and Headaches, Neurology, Sjögren's, Strategies For...
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Orphanet: portal for rare diseases
There is no disease so rare that it does not deserve attention… Orphanet: the portal for rare diseases and orphan drugs (6,760 diseases listed as of 17 November 2013). Filed under: Advocacy &...
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(no title here)
I couldn’t think of a pithy heading for this post…which isn’t much of a post, just a small update of sorts. I have things I wanted to post here on standby, haven’t read email in some time, and am...
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The River Denial
After all this time, I still occasionally talk myself into thinking Dysautonomia and it’s crappy comorbidites are a bad figmoid of my imagination, a night terror, or a narcoleptic hypnagogic...
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Reality check
People tend to say, “it’s just a rough patch, it will get better,” but it’s not, and it doesn’t. That’s just a pragmatic fact. Reality is what it is. I am on a very long downward slope, for which there...
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